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Tuesday, December 28, 2010

Others and Calmare Therapy - Update

The video from the previous post explains Calmare Therapy in general and shows Dr. D'Amato who is using the treatment on the East Coast.
Here is a video of my doctor in Saint George, Utah on the Calmare Therapy and someone he has treated. It's pretty cool and interesting.
Teen hit by lightning trying out new device to deal with pain - ksl.com

Recently I have had some severe pain days. Nothing less than a five and usually an eight or nine. It's been a bad week and not the happy and pain free Christmas I was hoping for. I've scheduled to go back to Saint George and have some more Calmare treatments done this Friday. I've come to realize that I will probably have to have at least one of these treatments a week for a while, or possibly the rest of my life, to keep my pain down to a manageable number. I was joking with my mom yesterday that I should just buy one of the machines and pull it along behind me:) I almost wish I could do this.

I was listening to a local Christian radio station and they were talking about new years resolutions the other day. I thought to myself what I would want to have as my resolution. The only thing that came to mind was to be healthier and be in no pain. I can't exactly control that so I am at a loss to what mine will be. Nonetheless I will be praying for a happy and pain free new year for everyone with CRPS including myself.



-"Would you dare would you dare to believe
That you still have a reason to sing
Cause the pain that you've been feeling
It can't compare to the joy that's coming
So hold on you gotta wait for the light
Press on and just fight the good fight
Cause the pain that you've been feeling
It's just the dark before the morning"

                     -Josh Wilson - Before the Morning

Calmare Therapy Treatment Demonstration and Introductory Video

Wednesday, December 22, 2010

Christmas Highs and Lows

I know I haven't posted in a while but I decided to see how I was doing a while after my last Calmare Pain Therapy Treatment. I am doing fairly well. I am still having daily pain and occasional flairs though. I am excited to say that my pain has at least gone from a daily level of 8-9 to a 5-6. I'll take anything I can get:) I've come to realize that even though this treatment, and possibly others in the future, can help me I will always have this disease and most likely always have the pain. Which sucks but in some way I feel that it has made me stronger. I am hoping to go back and get a few more treatments in the hope that I will get even better. The more treatments, the more time your brain has to be re-taught that you are not in pain. My doctor that performed the treatments says sometimes it can take up to two weeks to have the treatment take full effect. Your brain can take a while to make the changes. On another subject, I am very excited for the rest of this holiday season:) The only issue with this is that it is freezing, and raining at the moment, and cold makes my pain worse. Stupid cold. I'm having a problem with this because my RSD is in my foot and leg and this prevents me from wearing pants and socks so my toes are almost always ice cold. I mostly go around the house either wearing shorts short enough to not make my leg worse, or wide legged pajama pants so I can roll up the one side to shorts length and not make my left leg suffer. I find this immensely frustrating. Well, I hope that everyone has a Merry Christmas and a Happy New Year. And may your pain be as little as possible.


-"Heal me, O lord, and I shall be healed;
Save me, and I shall me saved,
For you are my praise"
                -Jeremiah 17:14

                                                                                                            

Monday, December 13, 2010

"Dum spiro, spero"

Today has given me new hope. I had my tenth Calmare Treatment by Dr. Chalmers. I went in at a pain level of 4, which is pretty low for me to begin with, and went out at a 1 in most places and 2 in my worst ones. So far, four hours later, it has stayed at the low level, which is uber super exciting: ) I am continuing my treatments for the rest of this week in the hope that the low pain/pain free time will last longer. I am praying that it will do just that. I am also praying for some friends who are trying out the therapy on the east coast.  The title of this post is "Dum spiro, spero", it means "While I breath, I hope" I love that quote. This treatment has given me so much hope for a life without pain. I am so thankful for it and my doctor who is amazing. Here is a close-up picture of the electrode on my foot for those who are curious of what it looks like or are considering having the treatment. If anyone has a question about it please feel free to ask me. :)
















"I have unanswered prayers
I have trouble I wish wasn't there,
And I have asked a thousand ways,
That you would take my pain away,
You would take my pain away"
       - Song "Your Hands" by JJ Heller

Friday, December 10, 2010

Flare:(

I am currently experiencing a flare. So much for the no pain time lasting. Everything from my toes to my mid thigh and my hip are burning with sharp stabbing and throbbing pain. My muscles are spazzing out. My pain right now is at a seven. This really sucks. I have another Calmare Treatment in a few hours. I am praying that it makes my pain go away.

Revelation 21:4- "He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore, for the former things have passed away.”

Thursday, December 9, 2010

Following my 7th Calmare Treatment

Here's a little update. It has been four and a half hours since my latest Calmare Treatment and I am still not experiencing any pain. This is amazing. I am praying that this continues to last. It is the longest it has so far. End update.

-"Pain is inevitable. Suffering is optional."- Anonymous        





Pain Free!

At this moment in time, after my 7th treatment, I am pain free. This is amazing! A miracle! I thank God for this blessing: ) Please, if you have CRPS, or any kind of chronic pain, try this treatment. It's utterly fabulous: D

Calmare Therapy

This morning I had my 6th Calmare pain treatment. I am very happy with the results. Yesterday after my treatment I had about ten pain free minutes. It was so awesome :D I still have six treatments remaining and possibly more if I need it. I am very glad that I've found a non- evasive way to relieve my pain. I honestly didn't think there was any possible way to get rid of my pain, even temporarily, and I am glad I was wrong. I'll try and post tomorrow after my next treatment. For now here are some pictures from my last treatment. The first is of the machine that is used and the second is of my foot with all the electrodes one it. I love this machine:)

Wednesday, December 8, 2010

Hello and Welcome

I am 17 years old and have had the nerve/pain disease CRPS/RSD  for two years. The main reason I have created this blog is to educate people about CRPS and tell about my journey working through it. I am trying to live my life to the fullest even though I have this disease I enjoy anything artsy especially drawing, photography, and sewing. I collect cactus, buttons, and colorful socks. I would love to meet you and hear your story. Please feel free to comment.